family 2009

family 2009

Saturday, August 15, 2009

Porters 6 month check up



So we had Porters 6 month check up yesterday and got a little bit of a shock. When they weighed him he only weighed 12 lbs 14 oz which is only 8 oz more than over 2 months ago. He is not even on the charts for his weight it has completely flatlined. When she started naming off developmental milestones we realized he is falling behind he isn't even trying to sit up on his own and he doesnt scoot or bounce when laying on his stomach he just sort of lays there or rolls over. His doctor thinks because of his lack of nutrition he simply does not have the energy to progress. She said that for whatever reason he is not getting the nutrition he needs from nursing and we need to give him more calories through formula supplementation. What little he was getting from me he was burning off by working so hard to get it. I feel absolutely horrible I felt that Porter has been off for a little while now and I couldn't figure out why he seemed so fussy. She wants us to bring him back in a few weeks to make sure he is gaining and if not they will switch him to a high calorie formula and do some lab work to see if anything else is going on. I gave him a bottle today and his whole demeanor changed he went from being fussy after two nursing sessions to talking and smiling and laughing. I know that it doesnt make much sense but I can't help feeling like I failed him in some way all I wanted was for him to be healthy and happy and somehow I feel like I am to blame. The one thing a mother should be able to do is keep her child fed. He also had a appointment with a pediatric dermatologist last week at Primary Childrens and we found out that he has ichthyosis (pronounced ick-thee-o-sis) he will always have really dry flaky skin that looks scaly similar to fish scales. As we walked through the halls of PCMC we could not be more grateful that we were there for a minor skin condition when so many others were there for much more serious reasons. I know Porter will be okay and that we have the healthcare he needs from a wonderful pediatrician but I am worried sick about him right now and I pray that we can figure out what is going on with him.

1 comment:

Unknown said...

I had the same problem with both of my boys, they were just not filled after nursing. The first time I gave them a bottle of formula it was like they were full for the first time. My family used to tease me that they needed whole milk and I was producing skim! ha ha. Good luck with everything.